On Air WES VENN

: Waiting for next track...

Wendover Dad's Plea To Help Daughter With Rare 'Locked-In' Condition

esme

5:49am 24th February 2014
(Updated 9:18am 24th February 2014)

If she could, a 3-year-old girl from Wendover with a rare, locked-in type disease would ask for your help.

Esme Davison-Hoult has Rett Syndrome, which only affects girls and has meant she's lost the ability to speak and is slowly losing control of her hands and arms.

Her dad, Anthony, is trying to raise as much awareness and money as he can for his little girl:

"She wants to do something, she remembers she used to be able to do it, but she can't and then she cries.

"Then you've got to try and work out, 'is she crying because she's hurt herself, because she's in pain, frustrated or just because she's a 3-and-a-half/four year old?'"

But the condition is so rare, that there's only been about five girls in the Aylesbury area with it in the last 25 years.

Anthony is trying to start up a foundation for Esme, called Esme's Allstars, to secure her future, through medical support, equipment and modifications to their home.

Tonight, they're holding a raffle and curry night at the Raj in Wendover. It's sold out, but Anthony hopes to put on mroe events and get the ball rolling on their £5,000 initial target.

If you want to help or find out more, you can get in touch via their facebook page: www.facebook.com/esmesallstars

Share This Story

Delicious Submit this page to reddit
Email Icon Get the latest local news direct to your inbox.
Sign up now for our email updates
.

Comments

No comments have been posted and approved yet.

Submit a Comment

Please log in to comment on this page.

Suggested articles
The Gruffalo Spotter_Gruffalo

Gruffalo hunters get smartphone app to help them

Wendover Woods visitors can use their screens to bring characters to life

Cat - Pets

Low-income cat owners helped with neutering

Chiltern Cats Protection are offering the discount to mark World Spay Day

Most read
dexter and georgie 5

Beloved dog tragically dies after licking mould from food caddy

The owner Sarah now wants to raise awareness of the potential dangers.

Mix96 Travel

Roadworks causing Aylesbury congestion

The A413 and A41 are having problems

Newer article

Police Hunt Pitstone Fraudsters

Local: Vulnerable woman targeted with lies and deceit on her own doorstep. Fraudster and his accomplice make off with money

Older article

No Face-To-Face Council Advice In Buckingham & Winslow

Local: AVDC's cabinet have agreed to closing their area offices in the towns, but will still provide computers, phone lines & house calls.

Top articles

Man wanted after restaurant burgled in Berkhamsted

Local: Last Wednesday (15/02) offenders gained entry to Porters Restaurant in High Street.

Theresa May makes appearance in the House of Lords as peers debate Brexit

National: The Prime Minister made a brief appearance in the House of Lords as peers in the upper chamber started debating the Government's Brexit bill.

HS2: 'It's Stolen My Time & Things I'd Promised Myself For 40 Years'

Local: Stan Mason is 79 and has been fighting the High Speed route for over 6 years. We wanted to see how that's affected him

Drake slams Grammys: 'I was labelled rapper because I'm black'

Showbiz: Drake has accused Grammy organisers of racial profiling, for labelling his music as rap due to the colour of his skin.

England's Joe Root hopes to be 'instinctive' captain

Sport: New England Test captain Joe Root says he hopes to be an "instinctive" skipper, and wants to lead a "tougher" national team to the next level.

Russian ambassador to UN Vitaly Churkin dies

World: The Russian ambassador to the United Nations, Vitaly Churkin, has died in New York, it has been announced.

New Year, New Career

Apprenticeship opportunities with Vale of Aylesbury Housing Trust