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Wendover Dad's Plea To Help Daughter With Rare 'Locked-In' Condition

esme

5:49am 24th February 2014
(Updated 9:18am 24th February 2014)

If she could, a 3-year-old girl from Wendover with a rare, locked-in type disease would ask for your help.

Esme Davison-Hoult has Rett Syndrome, which only affects girls and has meant she's lost the ability to speak and is slowly losing control of her hands and arms.

Her dad, Anthony, is trying to raise as much awareness and money as he can for his little girl:

"She wants to do something, she remembers she used to be able to do it, but she can't and then she cries.

"Then you've got to try and work out, 'is she crying because she's hurt herself, because she's in pain, frustrated or just because she's a 3-and-a-half/four year old?'"

But the condition is so rare, that there's only been about five girls in the Aylesbury area with it in the last 25 years.

Anthony is trying to start up a foundation for Esme, called Esme's Allstars, to secure her future, through medical support, equipment and modifications to their home.

Tonight, they're holding a raffle and curry night at the Raj in Wendover. It's sold out, but Anthony hopes to put on mroe events and get the ball rolling on their £5,000 initial target.

If you want to help or find out more, you can get in touch via their facebook page: www.facebook.com/esmesallstars

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