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Purple Day hits Aylesbury to raise awareness for Epilepsy

Purple Day hits Aylesbury to raise awareness for Epilepsy

Published by Mix96 News at 2:07pm 25th March 2019. (Updated at 2:09pm 25th March 2019)

Today (March 26) is Purple Day - an international day to raise awareness for Epilepsy.

Caz Barlow and her family are raising money for the charity Epilepsy Sucks UK which offers advice and support to those affected by epilepsy.

The organisation also provides anti-suffocation pillows to help reduce SUDEP (Sudden Unexpected Death in Epilepsy).

Caz's own daughter Natalia - who is five - was born with what's known as 'focal cortical dysplasia' (brain damage and malformation) and one of the main symptoms of this is epilepsy.

Her seizures are still not under control even with medication.

Caz says the support from Epilepsy Sucks UK has been invaluable to them, and they're keen to raise awareness for the work they do.

Death from suffocation can occur within minutes when a child or adult suffering a seizure becomes entrapped in an ordinary pillow which blocks their mouth and nose.

Last year, the Barlows raised just over £3000, which funded 69 anti-suffocation pillows.  

They want to raise a similar amount this year by hosting the following charity events:

  • A sponsored 7km walk in Aylesbury on Saturday which is open to everyone. 
  • A pub quiz and raffle will take place at the Cotton Wheel
  • A charity football match at St Johns Sports and Social Club in Stone

Natalia and 15 other children will be taking part in the walk.

To sponsor her, or if you can help with donating a prize, click here

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