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Swanbourne nursery raising awareness of cleft lip

Swanbourne nursery raising awareness of cleft lip

Published by Mix96 News at 5:52am 9th May 2019.

Children in Swanbourne are being asked to wear something blue today to support Cleft Lip and Palate Association awareness week.

Around 1 in 700 babies are born with a cleft lip, in total that's 1,200 babies in the UK every year.

Kelly Knell's son Barney attends Home Farm Day Nursery in Swanbourne and he was born with cleft lip and palate in January 2015.

Swanbourne nursery raising awareness of cleft lip
Barney when he was born

Kelly told us:

"Babies affected have to go through numerous operations throughout their lives starting as young as three months as well as potential speech therapy, grommets or hearing aids and extensive orthodontic work".

To date, Barney has now had three operations; two to repair his lip, hard and soft palates and one to insert grommets into his ears.

He is currently undergoing extensive speech therapy and is likely to need a further operation on his palate next year to improve his speech.

After that his next operation will be around 8 years; this will be a bone graft from his hip to fill in the gap in his gum line.

He will then be onto the orthodontic part of his journey.

But, he should be operation free between 18 and 21-years-old.

Barney Knell

A lack of awareness and understanding can leave those affected feeling isolated so the awareness week is a great way to change this for the better.

The nursery will be wearing blue today (9th May) and will also be enjoying lots of messy play and craft activities using everything blue and white.

The older children will also be doing activities around emotions and using mirrors to look at different emotions and facial expressions.

You can donate and find more information on CLAPA here.

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