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Aylesbury family finally gets news they've been waiting for

Aylesbury family finally gets news they've been waiting for

Published by Charlotte Fisher at 5:40am 16th May 2019.

An Aylesbury family finally got the news they had been waiting for, after two and a half years of uncertainty.

3-year-old Kaysey Copp is wheelchair bound and suffers with Spinal Muscular Atrophy.

Well, now her life is going to massively improve as the only approved treatment for her condition is made available in the UK.

Early on Wednesday morning (15th May) Kaysey's family received the news that SPINRAZA is now available on the NHS.

Kaysey will now have a better chance of an improved quality of life.

We spoke to her Grandad Gary Copp, who told us it was an emotional day because it is going to change her life:

"Quality of life is massively improved for Kaysey because she's young and the possibilities of movement that they would never have had.

"I'm not saying she's going to run a marathon but being able to transfer from the wheelchair to the toilet, things like that, that we take for granted."

Earlier this month, we told you that The Big Bear Nursery on Walton Court was fundraising for a wheelchair for Kaysey.

They are half way to their £6,000 target.

You can help them out by donating here.

 

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