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Haemophilia drug funding could help people in Bucks

NHS England has approved the funding

Published by Mix96 News at 7:55am 1st September 2019. (Updated at 10:52am 1st September 2019) 2-minute read.

Haemophilia drug funding could help people in Bucks

A new drug could help people dealing with haemophilia in Buckinghamshire.

NHS England has approved funding which will see people have treatment less frequently and without intravenous access.

Haemophilia is a rare condition that affects the blood's ability to clot. It's usually inherited, and most people who have it are male.

This means they don't have as many clotting factors as there should be in the blood resulting in them bleeding for longer than usual.

Dr Gerry Dolan, Consultant Haematologist at St Thomas Hospital, said:

"People with severe haemophilia face many challenges in managing their condition. There is a need for additional treatment options for bleed prevention, so this is a major advance.

"Achieving zero bleeds should be the goal that patients work towards with their doctor. Access to this innovative, preventative treatment could help make that a reality for many."

The new drug will be the only treatment option that can be self-administered by injection under the skin instead of with intravenous access.

Hemlibra would be taken once weekly, every two weeks or every four weeks.

Harry Smith from Aylesbury suffers from the condition and said this treatment will make a massive difference:

"It will have an effect on people like me and people who are slightly older, but I think it will have the biggest effect on the children, the youngsters like me nephew.

"He is two-and-a-half and he has an injection 3 times a week but obviously being 2 he doesn't understand whats going on so its quite traumatic for him and his parents."

In the UK there is more than 7,700 people with Haemophilia. 

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