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Fundraising for four year old to go to Disney World

Sienna has stage 4 neuroblastoma

Published by Scarlett Bawden-Gaul at 11:42am 10th February 2020. 3-minute read.

Fundraising for four year old to go to Disney World

A fundraising effort has begun to try and fund a trip to Disney for a little girl from Aylesbury.

Sienna Taylor-Law from Aylesbury has a rare form of neuroblastoma. 

It's a type of cancer that in the toddler's case started in her spine.

Speaking to us in 2018 mum Melanie Jane-Law told us just how rare Sienna's type of neuroblastoma really is:

"She's got neuroblastoma cells that they've never seen before anywhere in the world. So we can't be told there's a cure, but they can't say there's not a cure, because they've never treated those cells.

"Sienna is always going to have this tumour, so we want to keep money aside for possible medication later on. If she goes into remission, then there's a 5 year remission period.

"If it comes back after those 5 years then there's no cure, but it may be that a cure becomes available during those 5 years."

After a series of treatments not going to plan, Sienna is now in a clinical trial.

Her wish is to visit Disney World with her family. 

Elaine Ball from the Thomas Ball Charity is working with the family to try and organise the trip:

"The magic of Disney you just can't get anything better. And it does aid recovery, we have seen first hand what it can do, a trip to Disney.

"Sienna is a wonderful little girl who takes everything in her stride. She just goes about her daily life and has been an absolute marvel all the way through.

"It will give them something to focus on with all the horrible treatment going on."

The amount needed for the trip will depend on the cost of insurance, and they will have to wait until closer to the time for medical cover.

Medical insurance can be complicated to arrange for pre-existing medical conditions, but especially for children with cancer.

If for any reason the family are unable to make a trip to Disney, they money raised will go to a holiday to the UK and any excess money donated to charity.

To donate visit their justgiving page.

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